Jon Hastie is a well known figure in the Duchenne community. He is also the CEO and Founder of DMD Pathfinders - a large support network of people living with Duchenne muscular dystrophy. He is a regular guest on our Muscle Owl Talks show. He is in his late 30s and has Duchenne muscular dystrophy. He has a PhD and has produced his own feature length film called "A Life Worth Living".