Tune in to our second Muscle Owl Talks episode for Rare Disease Day 2017!
This week, Steve, Vivek, Sulaiman, and Peter discuss the vast differences in muscular dystrophies, the importance of getting a clear diagnosis, and how your condition can make up an integral part of your self identity. #rarediseaseday #rdd2017 #rarediseases #raredisease #musculardystrophy #cmd #congenitalmusculardystrophy #sulaimankhan #steveway #vivekgohil #peterduffy
Here is the first of our Muscle Owl Talks episodes for Rare Disease Day 2017!
It's a fantastic chat with Northern Ireland Rare Disease Partnership's Fiona McLaughlin about her work for rare diseases and the importance of raising awareness. #rarediseaseday #northernirelandrarediseasepartnership #rarediseasepartnership #nirdp #fionamclaughlin #michaelahollywood
Join Michaela and Peter as they host an impromtu discussion on humorous wheelchair stories!
This weekend Michaela found herself stranded many miles from home after her van broke down! We also remember the time a young man with Duchenne collided with a lorry and was pushed many miles before it stopped, later recalling, "It was quite a ride!"
As Michaela reminds us, "You'd be surprised where wheelchairs have been!" #muscleowltalks #disability #disabled #wheelchair #michaela
Throughout February, Jon has been driving one mile each day in his chair, and LIVE streaming on Facebook as he goes. As well as raising awareness in taking on the challenge, Jon is also raising funds for his chair DMD Pathfinders. If you'd like to sponsor him there's still time: https://mydonate.bt.com/fundraisers/jonhastie28miles
And make sure you catch one of his video updates in the final week ahead! #jonhastie #peterduffy #fundraising #disability #dmdpathfinders
Watch our special episode with Ravi Mehta and Manoj Thakrar, as we discover how ING are embracing Muscular Dystrophy UK's Moving Up project. Ravi is 27 years old, and has Duchenne muscular dystrophy. He has been working at ING's head office in London through the last few months, and ING have been learning how they can better adapt the workplace for employees with a disability. The project at ING is linked to their corporate partnership with Muscular Dystrophy UK, which was se
This week was Feeding Tube Awareness week, so we thought we'd dedicate our latest Muscle Owl Talks episode to the topic.
Whilst many people can be hesitant about using all different types of feeding tubes, they transform the lives of so many. Here are two of our regular guests, Sulaiman and Vivek, speaking about their experiences. Sulaiman has congenital muscular dystrophy, Vivek has Duchenne. Both have used a PEG tube for many years, and explain how using them can be a rea