Muscle Owl Talks Ep58: ADAPT Protest & Senate Vote on Revised Healthcare Act
The senate vote on the latest US healthcare bill is upcoming, and many Americans are fearful it will finally pass.
Watch Steve and Hannah as they give their reactions to last week's ADAPT protests, and explain why they are very much concerned. #healthcare #hannahsoyer #steveway #peterduffy #disability #disabilityrights #adapt #campaigning #politics #uspolitics #medicaid
Muscle Owl Talks Ep57: Sports Day for Children with a Disability?
We hope you're enjoying the heat wave - depending on where you are in the world!
With it being Summer in the northern hemisphere, and all the sports day videos across Facebook, we decided to reminisce on sports days gone by. We ask what is best for young children with a physical disability, and how best to adapt races!
Tune in here and on iTunes, and as always, feel free to like, share, and comment below! #disability #children #parents #school #duchenne #sma #musculardyst
Muscle Owl Talks Ep56: PS4 Gaming for Disabled People? Vivek Talks Gadgets!
Vivek has been developing some solutions to help make his gadgets more accessible! From his PS4 controller to a new extendible cup holder for his wheelchair!
Do you have any handy accessories for gaming?? Tune in to our latest chat and leave a comment below! #gaming #disability #vivekgohil #accessibility
Muscle Owl Talks Ep55: Shelley's DMD Snowdon Challenge: DONE!
It's a week since Shelley Simmonds took her son, Fraser, up Snowdon on her back! Tune in as we chat about how it went!
Fraser is 4 years old and has Duchenne muscular dystrophy. However, unlike many other boys with the condition, Fraser has never been able to walk. So Shelley decided to embark on a mammoth hike and fundraise over £11,000 for research into Duchenne muscular dystrophy while she was at it! #duchenne #musculardystrophy #fundraising #shelleysimmonds #children #p
Election Day is Here! Last Look at Key Disability Manifesto Pledges!
Election day is here, so let's take one final look at what each of the parties is offering for people with a disability in their manifesto! Facts and figures are used from Disability Rights UK's fabulous election resource. Labour Contents of the Labour party disability manfesto The disability manifesto is 28 pages and its chapters include: Ensuring an adequate standard of living and social protection Work and employment Education and training Accessible environments Health an
Muscle Owl Talks Ep54: Charlie Gard & Patient/Parental Consent
Charlie Gard is a young child who is currently being cared for at Great Ormond Street Hospital in London; he is currently on life support.
A last chance potential treatment for his condition lies in the US, but his parents are being refused the right to take him out and try the treatment. The doctors now want to turn the life support off, and end his life.
What is the right option? Peter and Michaela discuss... #righttolife #disability #michaelahollywood #peterduffy #politi
Muscle Owl Talks Ep53: Spinraza Delay in UK?! SMA Treatment (June 2017)
Late night edition Muscle Owl Talks!
We discuss the latest regarding SMA and Spinraza (nusinersen) in the UK.
70 children still not on the drug? What is causing the delay? #michaelahollywood #spinraza #nusinersen #sma #treatment #research #peterduffy
Shelley climbs Snowdon with son Fraser (4) on her back!
This weekend, our friend Shelley will be climbing Mount Snowdon in the UK - with her young son Fraser on her back!!! Fraser, who is 4 years old, has Duchenne muscular dystrophy, and their fundraising efforts will support research into the condition. You can check out Fraser's page here: Fraser & Friends
and their fundraising page: https://www.justgiving.com/fundraising/frasersimmonds #fundraising #shelleysimmonds #london #uk #duchenne #dmd
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