July - 2017

"Please do not assume that Charlie's life – or any of us who live with severe muscle-wastin

It's been a while since I ventured to a written blog where I speak entirely personally. Over the past few months I've stayed almost completely quiet, other than a single radio interview. It is time for me to speak on what could and should be the issue that propels disability rights forward into our century. First, a word for Chris and Connie. Hold your heads high. Over 27 years for me, and 35 years for my parents we have seen parents who do not have the strength that you have

Muscle Owl Talks Ep61: Accessible Gaming with Ian Hamilton and Vivek Gohil

Changing Places Day 2017

Across the UK, an estimated 250,000 people require accessible toilets/facilities to help them change. Their disabilities range from cerebral palsy and Spina Bifda, to Motor Neurone Disease and Multiple Sclerosis, and many of the 70,000 people living in the UK with a neuromuscular condition would also benefit from such facilities. The Changing Places campaign was set up 10 years ago, when there were just a dozen Changing Places toilets - now there are 1000 and that number is g

Muscle Owl Talks Ep60: Trains, the London Tube, and Accessibility!

Zoe was taken an hour out of her way last week, when her tube train decided not to stop at the station without prior warning! All this when she was on her way to one of her professional qualification exams! Tune in for another chucklesome episode! #accessibility #zoehallam #sulaimankhan #michaelahollywood #peterduffy #muscleowltalks #trains

What is EAMS and how could it help men with Duchenne muscular dystrophy in the UK?!

In episode 59 of our weekly chat show Muscle Owl Talks, we hosted Action Duchenne CEO, Diana Ribeiro, to discuss the Early Access to Medicines Scheme (EAMS). EAMS has been around for a few years, helping people get access to various drugs, but now it may help young men and boys with Duchenne muscular dystrophy. You can watch our episode below, and catch our podcast on iTunes! #dianaribeiro #RaviMehta #peterduffy #EAMS #Duchenne #musculardystrophy #research #treatment #drugs