21 Awesome Halloween Costumes Built Around a Wheelchair!
Starting with our very own Co-Editor, Michaela Hollywood's UP classic back in 2009... ​ Which costumes are your favourites? Are you dressing up this year? Email us your photos to halloween@muscleowl.com!
Muscle Owl Talks Ep75: Duchenne UK and DMD Pathfinders - Seeking Adult Perspectives
Duchenne UK and DMD Pathfinders are looking to recruit a panel of adults with Duchenne who can give their views on potential treatments and clinical trials. Do you know someone who would like to have their say? Watch episode 75 of our Muscle Owl Talks show, as Duchenne UK's Naomi Litchfield and DMD Pathfinders Jon Hastie explain why it's so important that older adults have their voices heard.
Muscle Owl Talks Ep74: This Body Is Worthy
"My name is Hannah Soyer. I am 22 years old. I have a body that mainstream society says is not worthwhile or beautiful. I'm deciding to change that."
Next week our friend Hannah Soyer will be hosting her project 'This Body Is Worthy'. Join us, as we discuss the project, and talk about society's views on body and beauty.
Campaign for Duchenne Drug Translarna in Ireland
Translarna - one of the treatments for Duchenne muscular dystrophy - is available in countries all across Europe. But it still isn't available in Ireland.
Last year, after the treatment was funded by NHS England, 11 year old Michael Young campaigned to get the drug in Scotland, and here he is again, campaigning with Lewis Harte to get in Ireland. Sign the petition to get make it available for the few young boys that need it! https://www.change.org/p/simon-harris-please-make
Muscle Owl Talks Ep73: Understanding the Clinical Trial Process for Rare Diseases
Watch our latest episode of Muscle Owl Talks! We are joined by Action Duchenne CEO Diana Ribeiro, and Lynnette Ellison, as Diana answers our questions on the clinical trial process for families with a child who has a rare disease.
David Mayes - A Tribute from Vivek Gohil
This week, David Mayes - friend of Muscle Owl, and one of the closest friends to our co-editor, Vivek - passed away. He had Duchenne muscular dystrophy. Our thoughts are with his family and friends. Read Vivek's tribute below: David Mayes.
I don’t really know how to start this goodbye, it’s really tough knowing that I’ll never see your face again. I’m so glad I got to spend time with you & make some fantastic memories. You always made the best of every day - you actually liv
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