At the recent Action Duchenne Conference, our editor Peter Duffy sat down with a variety of supporters from the Action Duchenne Community. Have a watch of the interview he took with Jo Eams, whose young son William, has Duchenne muscular dystrophy. #duchenne #actionduchenne

Today is World Duchenne Awareness Day. It was also 4 year old Fraser's first day of school! However Fraser - who unlike many with DMD, has never been able to walk - has been refused a motorised wheelchair by the NHS in England, and has been left with no autonomy in his manual chair. We discuss the situation with Fraser's mother, our good friend, Shelley. And we raise the very concerning normalisation of people having to fund their own wheelchairs. #wheelchair #Disability #mus

It’s World Duchenne Awareness Day 2017! Here is our annual Duchenne Awareness Day animation, featuring facts about the condition, and ALL the balloons we have created for the community through the last few weeks! Can you see the balloon of anyone you know?! Let’s share, raise some awareness, and get people talking about DMD! #duchenne #worldduchenneawarenessday #wdad17 #musculardystrophy #animation

Duchenne muscular dystrophy.... A childhood condition? After reading a number of posts from around the community, Peter and Vivek respond with their thoughts. How do you think muscular dystrophies should be communicated? Is it fair to a condition to focus on certain age groups? Is it misleading to focus on children with Duchenne when as many adults have the condition? Share your thoughts with us! #vivekgohil #peterduffy #Duchenne #dmd #musculardystrophy #muscleowltalks

This week on Muscle Owl Talks, we spoke to gaming expert, Ian Hamilton. He and Vivek discussed how the gaming industry is making games more accessible for a wide range of people with disabilities. #vivekgohil #gaming #accessibility #Disability #disabled #musculardystrophy #Duchenne

In episode 59 of our weekly chat show Muscle Owl Talks, we hosted Action Duchenne CEO, Diana Ribeiro, to discuss the Early Access to Medicines Scheme (EAMS). EAMS has been around for a few years, helping people get access to various drugs, but now it may help young men and boys with Duchenne muscular dystrophy. You can watch our episode below, and catch our podcast on iTunes! #dianaribeiro #RaviMehta #peterduffy #EAMS #Duchenne #musculardystrophy #research #treatment #drugs

We hope you're enjoying the heat wave - depending on where you are in the world! With it being Summer in the northern hemisphere, and all the sports day videos across Facebook, we decided to reminisce on sports days gone by. We ask what is best for young children with a physical disability, and how best to adapt races! Tune in here and on iTunes, and as always, feel free to like, share, and comment below! #disability #children #parents #school #duchenne #sma #musculardyst

It's a week since Shelley Simmonds took her son, Fraser, up Snowdon on her back! Tune in as we chat about how it went! Fraser is 4 years old and has Duchenne muscular dystrophy. However, unlike many other boys with the condition, Fraser has never been able to walk. So Shelley decided to embark on a mammoth hike and fundraise over £11,000 for research into Duchenne muscular dystrophy while she was at it! #duchenne #musculardystrophy #fundraising #shelleysimmonds #children #p

This weekend, our friend Shelley will be climbing Mount Snowdon in the UK - with her young son Fraser on her back!!! Fraser, who is 4 years old, has Duchenne muscular dystrophy, and their fundraising efforts will support research into the condition. You can check out Fraser's page here: Fraser & Friends and their fundraising page: https://www.justgiving.com/fundraising/frasersimmonds #fundraising #shelleysimmonds #london #uk #duchenne #dmd

Last week our friend and co-editor Vivek suddenly fainted, and had what he describes as a near death experience. So this week he and Peter decided to have a chat about the situation and discuss their views on life - talking being calm, taking things as they come, and mental health in general. #vivekgohil #peterduffy #muscleowltalks #mentalhealth #Duchenne #funny