August is SMA Awareness Month - you may have noticed from our frequent posting! We all know spinal muscular atrophy is a form of muscular dystrophy, but how do its different types vary? Hear our co-editor Michaela Hollywood​ (who has SMAtype2) explain in our latest edition of Muscle Owl Talks! #musculardystrophy #sma #spinalmuscularatrophy #disability #michaelahollywood #peterduffy #muscleowltalks

Today our co-editor Michaela was out and about, taking her high tech test drive! As many of you will know, Michaela has SMA muscular dystrophy (spinal muscular atrophy), and has only real strength in her hands. But does that mean she can't drive a car?! Oh no! :D #disability #driving #motability #disabled #sma #spinalmuscularatrophy #michaelahollywood

After receiving approval from the FDA in the United States, the long awaited treatment for spinal muscular atrophy (SMA) has been approved for use in Europe. The EMA has granted a license for use in all types of 5q SMA. Now families and charities such as Muscular Dystrophy UK will be pushing for the needed decisions from NICE & NHS England as well as the Scottish Medicines Consortium and the Health and Social care board in Northern Ireland to make Spinraza available to all wi

"If you outlive the age that they say you're going to live, you can feel lost!" - Vivek Gohil Using life expectancy for muscular dystrophy conditions? What do we think of it? Jon Hastie and Vivek discuss how talking life expectancy can often be unhelpful for Duchenne patients, and Michaela muses on her own experiences with SMA. #Duchenne #musculardystrophy #lifeexpectancy #age #sma #spinalmuscularatrophy #jonhastie #michaelahollywood #vivekgohil