Late night edition Muscle Owl Talks! We discuss the latest regarding SMA and Spinraza (nusinersen) in the UK. 70 children still not on the drug? What is causing the delay? #michaelahollywood #spinraza #nusinersen #sma #treatment #research #peterduffy

On Friday we received the news that Spinraza - the latest (and first) treatment for spinal muscular atrophy - had been approved by the EMA for use in all types of SMA across Europe. Here's our catch up chat on the subject, and you can read the full EMA report here: https://www.muscleowl.com/single-post/2017/04/21/SPINRAZA-APPROVED-EMA #muscleowltalks #peterduffy #michaelahollywood #spinraza #science #research #sma

After receiving approval from the FDA in the United States, the long awaited treatment for spinal muscular atrophy (SMA) has been approved for use in Europe. The EMA has granted a license for use in all types of 5q SMA. Now families and charities such as Muscular Dystrophy UK will be pushing for the needed decisions from NICE & NHS England as well as the Scottish Medicines Consortium and the Health and Social care board in Northern Ireland to make Spinraza available to all wi