In episode 59 of our weekly chat show Muscle Owl Talks, we hosted Action Duchenne CEO, Diana Ribeiro, to discuss the Early Access to Medicines Scheme (EAMS). EAMS has been around for a few years, helping people get access to various drugs, but now it may help young men and boys with Duchenne muscular dystrophy. You can watch our episode below, and catch our podcast on iTunes! #dianaribeiro #RaviMehta #peterduffy #EAMS #Duchenne #musculardystrophy #research #treatment #drugs

Late night edition Muscle Owl Talks! We discuss the latest regarding SMA and Spinraza (nusinersen) in the UK. 70 children still not on the drug? What is causing the delay? #michaelahollywood #spinraza #nusinersen #sma #treatment #research #peterduffy

After receiving approval from the FDA in the United States, the long awaited treatment for spinal muscular atrophy (SMA) has been approved for use in Europe. The EMA has granted a license for use in all types of 5q SMA. Now families and charities such as Muscular Dystrophy UK will be pushing for the needed decisions from NICE & NHS England as well as the Scottish Medicines Consortium and the Health and Social care board in Northern Ireland to make Spinraza available to all wi

We continue to see a large increase in the number of drugs progressing through clinical trials and coming to market. Will this translate into treatments for adults as well as children? Let's discuss... #markchapman #michaelahollywood #drugs #treatment #duchenne #science

Join us for Muscle Owl Talks Episode 37! It's a special behind the scenes episode, recorded before a filmed discussion a few weeks back. Michaela lifts a can of coca cola for the first time in her entire life (thanks to special increased doses of Salbutamol, which has recently been found to help SMA), so we jump off down the rabbit hole of drugs and treatments! #salbutamol #drugs #sma #treatment #cures #musculardystrophy