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Peter Speaks with Jo Eames at the Action Duchenne Conference

January 16, 2018

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Muscle Owl Talks Ep20: Life Expectancy and Muscular Dystrophy?!

November 6, 2016

"If you outlive the age that they say you're going to live, you can feel lost!" - Vivek Gohil

Using life expectancy for muscular dystrophy conditions? What do we think of it? Jon Hastie and Vivek discuss how talking life expectancy can often be unhelpful for Duchenne patients, and Michaela muses on her own experiences with SMA.

 

 

 

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