Muscle Owl Talks Ep81: Duchenne After 18; Avoiding Infantilisation of Condition
January 3, 2018
Muscle Owl Talks Ep65: SMA Awareness Month 2017 (August 2017)
August 22, 2017
Peter Speaks with Jo Eames at the Action Duchenne Conference
January 16, 2018
Muscle Owl Talks Ep69: No Wheelchair on the First Day of School?!
September 10, 2017
Today is World Duchenne Awareness Day. It was also 4 year old Fraser's first day of school! However Fraser - who unlike many with DMD, has never been able to walk - has been refused a motorised wheelchair by the NHS in England, and has been left with no autonomy in his manual chair. We discuss the situation with Fraser's mother, our good friend, Shelley. And we raise the very concerning normalisation of people having to fund their own wheelchairs.